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I got an email from briar today and it's not good news
Here is a caption from that email
"Saturday night my sweet Dustin went into a respiritory distress at the hospital. Eventually he was transfered to the Critical Care Unit. The tissue layers of the lungs were filled with fluid. He was immediatly sedated, paralyzed and put on the ventilator. This didn't seem to be doing anything for him. He was failing fast sunday afternoon. The Docs had a meeting with us to tell us they didn't know what caused this, but that the outcome was grave. In a last ditch effort to save his life, they hooked him up to an ossilator ventilator in hope that the pressure from this machine would inflate his lungs enough that he could actually receive oxygen. It took a while, but over time, it started to work. He has since shown some progress. He remains in critical condition. They are baffled as there was no warning that this was happening. They are saying its cronic lung disease, with unkown source. His outcome so they say is poor. But to me, any change in his condition is a change in the right direction. He is fighting with everything he has.
Today they might try to switch him to the original ventilator. This is good in one sence but terrifying in another. He has to be able to handle the regular ventilator to survive. Today, we hope and pray he will make the change succesfully.
My heart is completely broken, my nerves hang by a thin string. I am lost and wandering, not knowing where this is taking Dustin and I. I am terrified for the life of my little boy. I love him so much!!!! "
Those that know her, know of their struggle with leukemia and the ensuing bone marrow transplant.
Please everyone..pray for them...they've been through hell and can use all the best wishes possible...
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Wish Briars permission..here are her email addy's in case anyone wants to send notes of encouragement or best wishes their way
[email protected] or
[email protected]
thank you everyone in advance
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Thanks Lily..sending mail...
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omg............ my thoughts and prayers tonite...are special...and headed towards Briar~ and Dustin....
THank you ...LiLy.....thank you [img]graemlins/kiss.gif[/img]
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how trully sad....my thoughts and prayers are with Briar and her family tonight
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my prayers and thoughts are with you briar and Dustin and her family [img]graemlins/heart.gif[/img] [img]graemlins/hug.gif[/img]
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lily...much appreciated...my heart is heavy and aching, as I wipe my tears. Both Dustin and briar have been through so much. You are both in my thoughts and prayers.
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*sigh*..what do I say..I had the pleasure of meeting Dustin....in the hospital at sick kids..it was his 8th birthday..What an amazing little boy..
I'm so sorry judy..that he's having such a rough time..I wish there was something I could say..or do..that might help..
*hugs ya tight*..God Bless.My prayers are with you
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I just came in here...Haven't been here in months....And I read this...Being a mom myself...It broke my heart...I always have a candle lit for little dustin and for you judy...This will continue without fail...And every bit of my prayers will be sent to you both...With all my love!!!
*Wraps you in my wings*
BK
aka Cherie
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-is just cryin now so pardon my typing-
looks like my prayers are going out to more than one family today. Love you Judy! My prayers are with you and your little man! today and everyday!
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still thoughtful .... [img]graemlins/heart.gif[/img]
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I called my mom and asked her to pray for a dear friend and her lil boy....she said she would and from what i understand she has put in a prayer request with her church....all of our thoughts and prayers are with you Briar*hugs*
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I really am at a loss for words here. Judy, I can't imagine going through what you've had to face. It breaks my heart seeing what you and Dustin are dealing with, you are both in my thoughts and prayers.
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I have an update, my son is now on a conventional ventilator. His progress is slow. He remains in critical condition. His outcome is still unknown and may possibly be that way for a long time. As it stands, they say he has lung disease. The source is not known either. So many unanswered questions. All we can do is to love him, and encourage him with possitive thoughts and prayers. He is just 8 yrs old and has so much to live for. My memories are so clear and heart warming, they help me make it to another day.
I sat and read the lovely things you all posted, they brought tears to my eyes. I feel so much love from each and every one of you and I thank you from the bottom of my heart.
I have my lap top with me, when I can, I will sit down and post updates. Please keep him in your prayers.
HUGE HUGS
~briar~tantrum~ (Judy)
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Judy,
I hardly ever read through all the topics on everyone's board, so I just now found this when it was highlighted on the side of the hostboard. I am so sorry to hear of Dustin's downfall. He's worked so hard to gain steps upwards, and has been such a positive cheery child regardless of what he's had to go through. You know, without a doubt you and he are in my prayers. I can't express how sad I am at this very moment... my heart aches for you both. Please know we all love you and Dustin and we are constantly praying for you both and will continue to do so. Love you...*tremendous hugs across the distance from me to you* Bri
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<center><img src=http://mischief.homestead.com/files/barstarbar.gif></center>
<center>This morning when I wakened
And saw the sun above,
I softly said,
'Good Morning, Lord,
Bless everyone I love!'
Right away I thought of you
And said a loving prayer
That He would bless you specially
And keep you free from care!
I thought of all the happiness
A day could hold in store;
I wished it all for you because
No one deserves it more!
I felt so warm and good inside
My heart was all aglow...
I know God heard my prayer for you
He hears them all you know</center>
<center><img src=http://mischief.homestead.com/files/childprayLadyLove.gif></center>
[img]graemlins/heart.gif[/img] [img]graemlins/hug.gif[/img]
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I check this thread....several times a day....for updates... as it is always in the back of my head.
I am amazed but I know I shouldn't be...by the kind and wonderful people i've had a chance to get to know here.
[img]graemlins/heart.gif[/img]
my heart leaps when I see the amount of love and friendship that is within these virtual walls..... we be good people [img]smile.gif[/img]
~briar...my thoughts are with you and Dustin... stay strong in faith... *smoooch
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Briar,
Wanted to let you know we care in this very hard time for you and your family. Allnightlong and I just wanted to let You know we are thinking about you and Dustin. You both are in our thoughts and prayers. If there is any possible way we can help you out please don't hesitate to contact us or have lily pass on a msg. We know this is a very trying time for you Judy, but please take care of yourself and try to rest and eat when you can. Dustin doesn't need you run down right now either. Holds our dear friend close not letting go... Remember we are here for you and we truly care about you both very much. Stay in touch please when time allows. Sis, glance up in the sky and see the stars twinkling..Always know you are not alone for every star sparkling is a wonderful friend sending strength to you in a very subtle way....
With all our love,
Pickles/Allnightlong
[img]graemlins/rose.gif[/img]
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That we are chloe...we love and stick by each other in our times of need....
Briar...
Continued thoughts and prayers to you and Dustin and yours....
Love you*stormy sized hugs for you both*
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There are many of you that I know from Partyhouse, some just casually enough to say hello to and others that I know intimately. However, it doesn't matter. I still know within my heart that all of us are bonded in a odd sort of way, that can't really be explained. What Chloe said touched me, and made me realize ( but not for the first time ) how grateful I am to have all of you for friends. I think all of you are just wonderful and I'd like to say thank you for showing that side of yourself to me. It means so much to come online and see someone with a smiling face, and a kind word. I don't even want to begin to list names because I'm a dork and I'd forget to put someone's name on the list. I'd never want to intentionally hurt anyone. Deb, I miss seeing your smiling face around this place. Hope you're doing ok. [img]smile.gif[/img] and to the rest of you who come here *hugs* Just wanted you to know how special you all are to me. Judy, hon, hope you're holding up ok, and please let us know how little Dustin is doing.
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My pager went off at 4 a.m. today. The Doc said that Dustin is going into kidney failure, and that he has an upper GI bleed. Its a nightmare all over again. He was critical but stable, he is no longer stable, critical now. Its going to a heart ripping day. Not sure what else to say, he needs prayers, millions of them.
God Bless
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oh god Judy..i'm so sorry!!!
When you get a minute, call me collect, i'll stick around the house today
If you need me, i'm there ok..I'm on holidays, so i'll scoot down there if you want me too
I'm tired of feeling so hopeless to help you!
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Briar......My prayers are with you both... [img]graemlins/heart.gif[/img]
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*Holds you both in my thoughts and prayers*
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Judy...I'm keeping both you and Dustin in my thoughts and prayers. [img]graemlins/heart.gif[/img] [img]graemlins/heart.gif[/img]
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Oh Judy.. Im so very saddened to hear this latest news. My heart so goes out to you and Dustin, he is such the lil fighter. I know where he gets it.. from you. Heartfelt prayers, thoughts, wishes and love is being sent your way.
[img]graemlins/heart.gif[/img]
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Judy.....I too am praying for Dustin...and my thoughts are with you also...if there is anything at all i can do for you....please don't hesitate to ask.
All of your on-line friends are here for you....whenever you may need us !!
*HUGE HUGS* to you and Dustin both...hang in there
Love ya !!!! ...Jeepers ..(Nikki)
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Judy,
If there's anything... anything at all I can do for you, please let me know. Dustin is in my prayers nightly, as are you.
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Briar,
I'm so sorry to hear about your lil boy. I know how painful and heart rending it is to sit helplessly by while watching your child fight for its life in a hospital. I'm sorry for you and your family cuz i would never wish that on even my worst enemy. *huggs you* You and Dustin are in my prayers and wishs. Never give up hope, there's always a miricle waiting around the edges of despair.
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*sends Judy and lil dustin stormy sized hugs and even bigger prayers....* girl you will remain in my thoughts and prayers as long as need be...take care of yourself too......we love you and we're here if you need us
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Today I spent the day soul searching, I have accepted what is happening to my child, I dont like it but can not stop it. Dustin is on dialysis now, he has an ulcerated esophagas, and bleeding stomach ulcers too. He is receiving the best treatment humanly possible. Never knew I could feel so much love like I do for this little boy, he is amazing and I am blessed to have him for however long it may be. He did well today, he will remain on the dialysis for up to 2 weeks or until his kidneys re-start. One day at a time. I pray the time is on his side.
You are all very special people to me, offering Dustin endless prayers and hope. No one knows how long our time is here, we all need to stop and really look at just how precious life is. Be close as you can to those you love and to those you are waiting to be loved. There are too few words to express the overwhelming emotions I feel as I read the messages left for Dustin. All I can say is THANK YOU.
Lily I will call you Tuesday sometime...love ya sissy.
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we are praying here for you bri....and keeping you in our thoughts....love you
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Judy...I know everyone has offered...And the offer stands with me....If you need anything at all....Please don't hesitate to ask....I know the pain in your heart is unbearable..And I know what everyone is saying is comforting to a point...But there is nothing anyone can do or say that helps in a way that you want....I know all our prays are appreciated...I know all our thoughts are welcomed....I also know how alone you feel...For I went through what your going through many yrs ago...Cheerish him...Don't give faith and hope..Cause thats all we have...Thats what binds us.....Gets us threw the mornings..afternoons and evenings....We all wish that we could do more for you....But all we really can do is be here for you.....Pray and send all our love across the distants the seperate us....And when its quiet and you feel alone...Remember all the people out here that have you in our hearts...and in our thoughts....And we all have are arms wrapped tightly around you...I love you briar...And so do many more.....*Looking back at all the wonderful friends that have posted and smiles softly knowing all these people are praying*
Dustin sweetie...You keep fighting...You show the world what a strong little boy you are....Ah shucks....You already have....And I proud of you little man....*Hugs you tight*
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Judy,
Thinking of you and Dustin much. Holds my friend tightly never letting go. My thoughts are with You both and many many prayers.
Love,
Pickles [img]graemlins/rose.gif[/img]
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He's a tough lil guy....with a great momma....*hugs you both*..... [img]graemlins/heart.gif[/img]
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Judy,
This is David, aka SiR WaCkO, I really hate to hear everything that your little boy is going through. I am praying for both of you to have the strength to endure. It is really horrible for a child to have to go through something so tragic. You both will stay in our hearts and in our prayers. Please let us know if there is anything that Bri and I can do for you. We will both be with you in spirit so that you are not alone during this time of need.
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